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Vol. 42. Num. 6.August - September 2018
Pages e13-e16Pages 327-396
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Vol. 42. Num. 6.August - September 2018
Pages e13-e16Pages 327-396
Original
DOI: 10.1016/j.medine.2018.05.004
Main information requests of family members of patients in Intensive Care Units
Principales demandas informativas de los familiares de pacientes ingresados en Unidades de Cuidados Intensivos
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J.M. Velasco Buenoa, A. Alonso-Oviesb,
Corresponding author
a.alonso@salud.madrid.org

Corresponding author.
, G. Heras La Callec, C. Zaforteza Lallemandd, Equipo de investigación del Proyecto HUCI (Humanizando los Cuidados Intensivos)
a Unidad de Recuperación, Hospital Universitario Virgen de la Victoria, Málaga, Spain
b Servicio de Medicina Intensiva, Hospital Universitario Fuenlabrada, Madrid, Spain
c Servicio de Medicina Intensiva, Hospital Universitario de Torrejón, Madrid, Spain
d Hospital Comarcal d’Inca y Departament Infermeria i Fisioteràpia, Universitat Illes Balears, Mallorca, Balearic Islands, Spain
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Tables (2)
Table 1. List of the 20 main questions by order of importance for the families and its association with the order of importance given to these same questions by nurses and doctors.
Table 2. Questionnaire with major score differences between families and nurses, families and doctors, and doctors and nurses.
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Abstract
Objective

To compile an inventory of information requests prioritized by the family members, to find out which professionals them consider able to respond these requests, and to explore the differences in perception between family members and professionals.

Design

Qualitative analysis of content validation and descriptive cross-sectional study.

Scope

41 Spanish ICU.

Participants

Relatives, physicians and nurses of critical patients.

Intervention

From an initial list of questions extracted from literature review, physicians, nurses, and relatives of critical patients incorporated issues that they considered not included. After analyzing content validity, a new list was obtained, which was again submitted to the participants’ assessment to evaluate the level of importance that they assigned to each question and which professional they considered appropriate to answer it.

Results

Most important questions for the relatives: concern about the clinical situation, measures to be taken, prognosis and information. There was a coincidence between relatives and professionals in the priority issues for families. There were significant differences in the importance given to each question: between doctors and relatives (72/82 questions), and between nurses and relatives (66/82 questions) (p<.05). For the relatives, 63% of the questions could be answered by doctors or nurses, 27% preferably by doctors and 10% by nurses.

Conclusions

The most relevant issues for families were prognosis and severity, but also the need for information. Healthcare professionals tend to underestimate the importance of many of the questions that concern families. Relatives feel that most of their concerns can be resolved either by doctors or nurses.

Keywords:
Communication
Critical care
Decision making
Family
Health knowledge, attitudes, practice
Needs assessment
Professional-family relations
Patient care planning
Resumen
Objetivo

Elaborar un catálogo de demandas informativas priorizadas por los familiares, conocer qué profesionales consideran estos que pueden responder a estas demandas y explorar las diferencias de criterio entre familiares y profesionales.

Diseño

Análisis cualitativo de validación de contenido; estudio descriptivo transversal.

Ámbito

Cuarenta y una UCI españolas.

Participantes

Familiares, médicos y enfermeras/os de pacientes críticos.

Intervención

De un listado inicial de preguntas extraído de revisión de la literatura, médicos, enfermeras/os y familiares de pacientes críticos incorporaron cuestiones que consideraron no incluidas. Tras análisis de validación de contenido, se obtuvo un nuevo listado que fue valorado nuevamente por los participantes para determinar el nivel de importancia que asignaban a cada pregunta y qué profesional consideraban adecuado para responderla.

Resultados

Cuestiones más importantes para los familiares: preocupación por la situación clínica, medidas a tomar, pronóstico e información. Existió coincidencia entre familiares y profesionales en las cuestiones prioritarias para las familias. Existieron diferencias significativas en la importancia dada a cada pregunta: entre médicos y familiares (72/82 preguntas) y entre enfermeras/os y familiares (66/82 cuestiones) (p<0,05). Para los familiares, el 63% de las preguntas podrían ser contestadas por médicos o enfermeras/os indistintamente, el 27% preferentemente por los médicos y 10% por las enfermeras/os.

Conclusiones

Las cuestiones más relevantes para las familias fueron pronóstico y gravedad, pero también la necesidad de información. Los profesionales sanitarios tendemos a subestimar la importancia de muchas de las cuestiones que preocupan a las familias. Los familiares consideran que la mayoría de sus inquietudes pueden ser resueltas indistintamente por médicos o enfermeras/os.

Palabras clave:
Comunicación
Cuidados críticos
Toma de decisiones
Familia
Conocimientos, actitudes y práctica en salud
Evaluación de necesidades
Relaciones profesional-familia
Planificación de atención al paciente

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